Fibromyalgia can make you feel like a shell of yourself, exhausted from the abnormal sleep patterns, wide-spread pain, and countless other symptoms. The emotional turmoil of not being able to control your body- and thus losing control over other apsects of your life- is traumatic.
Not enough research has been done on the disease to understand it well enough to cure it. The research that HAS been done is mostly based on traditional beliefs and practices, which results in the industry looking at it from completely the wrong perspective (in my opinion,) making it nearly impossible for us to get treatment that improves our quality of life. I plan to continue adding resources to this page as often as I find relevant information. Don’t forget to check out the blog posts I have here, as well as my graphics, and writings I’ve had published on other sites. There are Fibromyalgia & Chronic Illness related writings in all.
National Fibromyalgia Association-Comprehensive information for anyone needing to know about Fibro and how it affects us.
Not the Last Word: Fibromyalgia is Real, Joseph Bernstein, MD – This is an interesting paper about how researchers and doctors view Fibromyalgia and the patients who present with it. Take it slow and read through it all before forming an opinion. There are responses from others included and they are also good reads.
This is a journal piece so there is lots of technical language, but what it comes down to is evidence that suggests #Fibromyalgia is a disease of the immune system, not the brain. They were able to inject mice with stuff from Fibro patients and the injected mice actually showed a significant change- also proving that the symptoms we complain about are very real💜 The Journal of Clinical Investigation
The Journal for the International Association for the Study of Pain– New research connecting gut bacteria to Fibromyalgia
Journal of Biological Chemistry–Metabolic fingerprinting for diagnosis of fibromyalgia and other rheumatologic disorders
CenterWatch- Clinical Trials– You can search for clinical trials you qualify for. We need to be taking part in any of these that are targeting the right aspects of the disease to further research. The more info they gather, the closer we are to getting treatment that works.
Websites and social media accounts that focus on Fibromyalgia specifically. Great to follow for support, information, and relatable stories, if you live with Fibromyalgia.
For other stuff I love, you can check out the Good Stuff page